iConquerMS™ can support many different types of studies depending on the nature and goals of your research program.
Studies using existing data/biosamples: Data previously collected from iConquerMS™ participants, such as data from core questionnaires and EHRs that have been uploaded by participants, can be readily shared with researchers. We plan to begin a pilot saliva sample collection project soon and the extracted DNA will also be available to researchers. In the future, as we engage in additional research studies, any data as well as any leftover banked biosamples collected specifically for those studies will also be available to other researchers for use in their studies. Our consent processes governing the collection of data and biosamples from iConquerMS™ participants permit open sharing of these resources with any researcher without the need for additional consent.
Studies involving collection of new data/samples: If your research requires access to data and/or biosamples that have not already been collected, we will be happy to work with you to obtain these resources. We can implement new data collection mechanisms through the iConquerMS™ platform and/or arrange for collection of biosamples from participants. Data and samples can be collected either from the entire iConquerMS™ cohort or from specific subgroups, depending on your needs. For some studies, such as those involving the deployment of a new questionnaire on the iConquerMS.org portal, no additional consent will be needed. If an additional consent is needed for activities not covered by our main consent, we will work with you to put this in place.
Studies involving PCORnet data: We can facilitate MS-related studies requiring access to data contained within the PCORnet Common Data Model or collaboration with other PCORnet member networks.
Collaborative studies with other studies and cohorts: We welcome collaborations with studies using other research networks or cohorts, other data collection platforms, and/or other research resources that already exist or are in development. If iConquerMS™ can enhance the statistical power of your study, provide access to new patient populations, supply valuable patient input to your efforts, and/or provide other types of support, we would be delighted to talk with you.